I started using Copaxone in May of 2000. And I’m still using it. Count it – that’s 13 years (plus) of daily injections. Okay, so there were a few days in there that I forgot, but I did the injections almost without fail.
I started using it before the syringes were prefilled – I was glad for that change. I have seen other changes through the years as well.
I try to be faithful with my log, noting anything noteworthy.
I have experienced what is called “dimpling”, which means the areas that have taken the most medicine over the years are rather sunken in, appearing as dents in the body’s natural shape. After so many years, my injection sites resemble waves. I have learned ways to do the injections that work for me and I adjust them as needed.
At my last neurology appointment, I asked my doctor about Copaxone’s effectiveness in my personal case. He felt it wasn’t helping and gave his blessing to stop. With guarded relief about not having to bother with it, I went through my days NOT doing injections but still thinking about whether I had done one yet each day. The new routine of not taking it was starting to settle in.
About ten days after I had stopped, I had vision blurriness. I responded the way I do when possibly overheated (thinking perhaps it was Uthoff’s ), but there was no improvement. Then, I pulled a syringe from the refrigerator and “shot up”. Within 6 hours, my vision returned to normal. Coincidence?….I didn’t and don’t think so. Convinced the medicine had been doing more than I or the doctor had given it credit for, I did my shot the next day and the next.
I decided to continue taking Copaxone. I do now skip the most difficult day/injection site for me, but I do the injection the other six days of the week. For now, this is what I do.